FAQs
Personalized & Precision Medicine
The terms ‘Personalized Medicine’ and ‘Precision Medicine’ have similar meanings and are often used interchangeably.
Sometimes, ‘Personalized Medicine’ is taken to mean developing specialized treatments for an individual rather than a group. You can find a useful explanation here.
The National Institutes of Health (NIH) defines Precision Medicine as, ‘An approach to disease treatment and prevention that seeks to maximize effectiveness by taking into account individual variability in genes, environment, and lifestyle’.
The Precision Medicine Initiative was originally launched by President Obama. You can find out more about this initiative here.
Personalize My Medicine and personalizemymedicine.com
Personalize My Medicine was born out of a growing need to address and facilitate the increasing willingness and determination of people and patients to to take charge of their own health, combined with recent and rapid developments in information, communication, and health technology which are both stimulating and enabling a more personalized and individual approach to healthcare.
We aim to place people and patients at the center by enabling them to both make the most of medical innovation and to actively promote and advance research into medicine and healthcare for the benefit of themselves and others. For a more detailed overview of our aims, please see our About page.
Our services are personalized and focus on patients as people and as individuals.
We are each individuals and even though one person may have been diagnosed with the same condition as another person, Personalize My Medicine recognizes that every person and their situation is unique. We realize how difficult it is to identify accurate and reputable sources of information about your condition and we apply our knowledge, skills, and experience to help you to make the most of advances in medicine and medical innovation using a personalized, scientific, and professional approach.
We know that health encompasses much more than diagnosis and treatment and therefore, we look at the full spectrum including allied health, to also make you aware of advancements in physiotherapy, occupational therapy, speech pathology, and related services where relevant. At the same time, we will also give you the option to be entered into a register and database of others who may have a similar condition to yours.
This will allow us to invite you to take part in relevant surveys and campaigns that you may decide to initiate as a group, as we recognize that certain initiatives may benefit greatly from collective efforts. While we do not provide services for care and support directly, we will refer you to official and reputable charities and other organizations that may be able to assist you, wherever possible.
To get in touch with us, please use our Contact page. Please enter your details and a brief description of what you would like to discuss with us. Your details will be kept strictly confidential and will at no time be shared with any third party, unless you specifically authorize us to do so. Please see our Privacy Policy for more details.
Patients and patient families
Please contact us via the Contact page, briefly mentioning the condition or conditions you are interested in. We will contact you directly by email and may arrange a call with you during which we will further explain our process.
Researchers, medical professionals, & innovators
Please follow us on Twitter, connect on LinkedIn, and get in touch via our Contact page.
Collaborators, Partners, & Sponsors
Please connect with us on LinkedIn and/or contact us via our Contact page.
There are many different ways in which you can get involved. If you are patient and member of the public and would like to help us to direct our research facilitation and crowdfunding efforts, please complete one of our surveys. If you would like to suggest a topic for a survey, please get in touch via our Contact page. If you would like to join our team, collaborate with us, or sponsor us, please use our Contact page or connect on LinkedIn. Please sign up to our free monthly newsletter, to stay up to date on all our activities.
Are you a medical innovator? Let us know about you!
If you are a start-up or established company developing any type of medical innovation, whether drug, device, diagnostic, wearable, app, or other, let us know about you so we can let patients and doctors know about the innovations that may be relevant to them. The best ways to do this are by registering on this site, following us on Twitter, and connecting on LinkedIn. If you are interested in collaborating with us or sponsoring us, please get in touch via our Contact page.
If you are a patient, researcher, or medical innovator and are interested in running a crowdfunding campaign, please see the next section on Crowdfunding.
Crowdfunding
Patients
You can decide to set up your own campaign to incentivize the development of a drug or other treatment for a rare condition or other unmet medical need. We will help you to set up and build your campaign. We can also help you to identify experts, institutions, companies, and organizations with whom you may wish to collaborate. Ultimately, the campaign is initiated and promoted by you and decisions on what to campaign for and who you would like to work with are made by you. Patients decide.
Innovators
We define a medical innovation as an innovation that is either at the stage of clinical trials, entering the market, or already available on the market, as well as earlier stage research results that show great potential for being applied or developed into actual medical treatments and interventions, and that are likely to have a significant impact in improving health and/or quality of life.
We are especially interested in promoting technology convergence and would like to hear from you if you have a prototype for a surgical instrument, medical device, or diagnostic that addresses an important and unmet medical need. We are also very interested in hearing about projects related to the diagnosis, treatment, and management of rare conditions and neglected diseases.
We can help you to set up and build your campaign. We can also help you to identify experts, institutions, companies, and organizations with whom you may wish to collaborate on your project.
We will be providing detailed information on this shortly.
Our Charges
Charging is agreed with you on an individual basis depending on what you would like us to look into and to help you with. In order to make our services accessible to as many people as possible, we are open to arrangements with charities and other organizations that may be willing to reimburse the costs of our services. If you are a charity, non-profit, healthcare provider, or other organization involved in treating or supporting patients with rare diseases and would like to find out more about our services, please do get in touch with us via our Contact page.
We will individually assess your requirements depending on the condition or conditions that you would like to be researched. If you decide to go further and would like us to help you to set up a research network and/or set up and run a crowdfunding campaign, we will discuss all your options with you on an individual basis.
If you are a patient with a rare condition and we are unable to help directly, we will always try to direct you to charities and reputable organizations and resources that are currently available which may be able to assist you.
Please see our Terms & Conditions, Privacy Policy, and Cookie Policy.
No. Neither personalizemymedicine.com, Kaizen Bioconsulting Ltd., and Dr Sharmila Bakshi, nor any interns, employees, or advisors of personalizemymedicine.com or Kaizen Bioconsulting Ltd. provide any medical advice. We aim to inform and facilitate and to help you to be as proactive as you would like to be with regards to advancing medical innovation and addressing your own healthcare needs. However, we do not provide medical advice and we always encourage you to discuss any and all information that we provide to you with a medical doctor. We will always provide you with original references for any information that we provide to you so that you can refer to these directly and discuss the information with your healthcare provider.
