Our Mission
There has been much talk of patient-centered medicine and many discussions have been had at numerous scientific and medical congresses all over the world. However, no matter who we are and what profession we may belong to, most of us have been a patient at one time or another, and have experienced the reality. Patients are often notably absent from these meetings and conferences, and if we are honest, often come last in the process of research, development, medicine, and healthcare, if they come into it at all.
Our aim, first and foremost, is to place people and patients right at the center of research and development into medical innovations. We research, inform, facilitate, and help you to take charge of your health and to be as proactive as you would like to be in advancing and incentivizing the development of medical innovations. We want to help you to both access medical innovations, and to actively participate in making them available to those who need them.
We discuss your requirements with you on a strictly confidential basis and apply a scientific, evidence-based, and professional approach to researching your condition and informing you about the latest medical innovations relevant to you. Depending on your requirements, we identify the latest research and innovations addressing risk, prevention, diagnosis, detection, treatment, management, and support, in an easy to understand, and integrated manner. A particular area of our focus is orphan diseases, which comprise both rare diseases and neglected tropical diseases, as these are clear areas of unmet medical need.
President Obama’s announcement of the Precision Medicine initiative in January, 2015, heralded the beginning of a new era of personalized and precision medicine. The explosion in the number of new medical innovations, whether they be drugs, vaccines, diagnostics, devices, wearables, or apps being developed is astonishing, but making the most of these is much easier said than done. Our current models of drug development, healthcare, and healthcare systems are simply not keeping pace with demand and the desire of people and patients to have greater choice. We want greater choice in what research takes place and on which medical conditions, we want greater choice in what drugs and therapies we are able to access, and we want greater choice in how we access those innovations. Most of all, we want medicine and healthcare to be centered around us as people and as individuals.
The speed at which advances in medical innovations are being made is currently outstripping our ability to apply these innovations to benefit our health and well-being. On the one hand, it is very heartening to read about the incredible technologies and treatments such as genomic analyses and immunotherapies that are being announced on a daily basis. On the other hand, many of us are left wondering how and when we and our families will be able to benefit from them.
While the first step is to inform ourselves, information alone cannot benefit us anymore than walking into a library and walking out again. We are now in an age where there is no shortage of information. In fact, information is all around us. Given the sheer volume of information available to us, identifying information that is relevant to our conditions and to us specifically as individuals is a challenging task. Being able to discern which information and sources of information are accurate and reliable is critical, but even this does not bring benefits on its own. In order to truly benefit from scientific knowledge and awareness of new medical innovations, we have to be able to apply this information to our own individual circumstances.
To find out more about what we do, please go to our FAQs page.
To get a better sense of what we mean by putting ‘patients at the center’, please have a look at the following videos:
