Personalize My Medicine is partnerning with Raremark!
Raremark keeps families updated with the latest research and treatments in development, and enables them to share their valuable experience to help others. We also help people affected by a rare disease be heard by the people developing new treatments. Our aim is to bring the voice of the community into the development of new medicines, so they are produced with families in mind. Find out more at
New Tool!
In a recent survey conducted by Raremark with people affected by a rare disease, 94% of participants said they would share their data to help others. Raremark has built a new tool that helps families share their valuable real-world experience which can help to speed up drug development. To sign up and start sharing your experience in rare disease in on of our nine rare disease communities, click here. We are adding new communities every month.