Partnership with RareCare

RareCareUK aims to supply care when it is lacking through the normal channels.

‘Being told you or a child has a rare disease is not only devastating from the view that there is an illness, but this devastation is compounded by the knowledge that your care and hope are limited.  RareCareUK will provide care for now, hope for future, and the ability to play a role in achieving this’- Dr Shara Cohen, Founder of RareCareUK